Be The Match

Around three years ago, my work had a luncheon with the Be The Match bone marrow donation program and I signed up. I may or may not have been lured in by free sandwiches. They swabbed our cheeks as a sample and took our contact information.

I promptly forgot about this, save for a few mass emails. Then in August, after I had quit my job and my health insurance was about to run out, sure enough, I got a phone call and email that I was a match with someone with cancer.

For some reason I never really thought they would call me. It all seemed very abstract. But once you know that there is one particular person out there who needs your help — and you are the only one who can do it — how could I say no?

So I went to NIH in September and did a blood test to confirm. There was someone who was a better match than me, but a month later I found out that person couldn't do it. Thankfully for me, it wasn't the type where they go in through your hip and you have to stay overnight in the hospital. Instead, it was a PBSC donation where they give you injections to increase your blood-forming cells, then they take it out through your blood. You can read more about it in that link.

So within a few weeks I went and got a physical and then for five days before my donation day, a nurse gave me a shot. My back hurt and I had a headache. It was strange to have my own private nurse, coming to my apartment every day to give me a shot. The last day, they put me up in a hotel near NIH and the nurse showed up to give me a shot. "I always feel like it's a scene from Law & Order," she said as she got the needle ready. "Like the cops are going to bust down the hotel room door." It did feel like some kind of doping ring.

The next day I was nervous about the needles because I have small veins. But that was fine. What turned out to be the worst was the sheer amount of time it took. You can't get up or stand up or move your right arm. But you can watch movies. I watched "He's Just Not That Into You" then moved onto "The King's Speech" while trying to eat a pb&j sandwich, getting jelly all over my hospital gown. I figured I was almost done. Then the doctor said I had five more hours left. Shortly after that, I started panicking. It was a little bit painful, but also mentally taxing to know you can't move, at all. I worried that I wouldn't be able to make it the rest of the time, and then they wouldn't get enough bone marrow and it would all be a waste. But I watched "The Devil Wears Prada" and pushed through.

So I spent about two of the eight hours crying. Ha. Poor nurses. That's been the pattern this year. I can do brave things —quit a job that makes me miserable, donate bone marrow — I'll just cry copiously while doing said brave things.

And every time anyone came over and said things like "You're saving someone's life," I would just start crying. I don't know why. Then the doctor and the nurses would start freaking out. I tried to tell them, "Don't mind me, I cry all the time."

So immediately after it was finally over I felt weak and tired, and I did feel tired yesterday a little bit but I feel pretty good today. They got enough bone marrow and shipped it off. I'm praying it will help cure the patient. My donor coordinator, who was so sweet throughout the whole process and sent balloons and chocolate-covered strawberries and bananas yesterday, said I could find out in thirty days what happened with the patient. I don't know if I want to know, if it doesn't help it will be so disappointing.

Violet Blonde

Self Portrait (Foils), 2012

Joe said this should be my profile picture for everything.

Turns out my hairstylist used a shade of blond for my highlights that has violet undertones. I didn't know she was going to do that – wouldn't you tell someone you are going to put purple in their hair? — but I really dig it. She knows I like the avant-garde, I guess.

Can you tell? Let me know if you can!

Chicago Architecture Tour

This was my third visit to Chicago, and every time I've wanted to go on an architecture tour. And this is the trip when I finally achieved my goal. I went on the boat tour with the Chicago Architecture Foundation, and the guide talked about nearly every building on along the river. It's all a marvel of achievement, and what I was struck by is the fact that these skyscrapers are still being built even today. Like Studio Gang Architects' Aqua, completed in 2010. Interestingly, it's the largest project ever awarded to an American firm headed by a woman and the tallest building in the world from a female lead architect. Although the recession is obvious too, thanks to a giant hole in the ground where Santiago Calatrava's Chicago Spire should be.

Tunes Tuesday: "Radiator Sister," The Mynabirds

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Photo courtesy of Girlie Action Media

I was lucky enough to interview singer Laura Burhenn of The Mynabirds for Refinery29 last week, and she really was so thoughtful and sweet. Throughout the last month, I listened to her album Generalsa million times not because I had to but because I wanted to — it is so good. If you like Jenny Lewis and female singer-songwriters with a point of view, definitely check out this album. I think it's one of my favorites of the year. There's plenty of range on Generals, but I'm going with "Radiator Sister" as today's pick because it's so darn catchy.

Chicago Eating Tour 2012

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German chocolate doughnut, where have you been all my life? Glazed & Infused is making dreams come true.

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Me, getting absolutely no air.

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"Time to make the doughnuts..."

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Another fancy doughnut, this time with bacon. Courtesy of hip brunch spot Longman & Eagle.

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I liked the cocktail illustrations at Scofflaw.

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Shortly after eating the massive chocolate doughnut, we had lunch/dinner at Frank 'n Dawgs, where they serve a very dressed up hot dog. I went for a brat with portabella mushrooms, then we split the roasted cauliflowers and truffle fries. It was a meal for champions.

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Big Shoulders

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"Stormy, husky, brawling, City of the Big Shoulders..."

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That's right, Chicago!

I love having friends where when I visit them, I don't have to plan anything. They have my holiday all sorted. Sure enough, I didn't plan a blessed thing, Lani seemingly knows everyone and is plugged in everywhere. So as soon as I got off the plane, we were off to see Gemini Club do an in-store performance at Dr. Martens.

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They were really fun, dancing on the counter near the cash register. The lead singer claimed someone threw up but I don't think anyone was partying that hard at the Dr Martens store.

We then ate tacos at Big Star, the kind of honky tonk hipster taqueria where they play Loretta Lynn's "Fist City." I love Loretta Lynn and I love tacos so sign me up. Lani then took us for spicy chocolate ice cream at the futuristic iCream, where your ice cream is individually churned and made to order.

 I know this is probably meant to entertain children, but I oohhed and ahhed with great respect.

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On day two, I did some work at the aforementioned "Big Shoulders" coffee shop, where I ordered a marshmallow latte. Hey, I'm on vacation and it was delicious. I'm just thinking about it now, but a design-y coffee shop selling marshmallow lattes doesn't readily correlate with Carl Sandburg's poem about butchers, tool makers, freight handlers and Chicago brawn.

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Later that afternoon, I walked around Wicker Park and tried to shop but nothing caught my eye. Except murals and street art.

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Everyone has a single speed because it's so flat here.

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Lani has a single speed, and a moped, pictured here! So cool. She is on the fringes of a moped gang, for real. It's a group of guys who hang out and fix up their mopeds. I made her pose with the moped while wearing her cavewoman Halloween costume, assembled from faux fur pieces in her closet.

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I forgot to ride the moped on the trip! Doh! I'm secretly terrified. We rode the bus instead, and I was very impressed with how easy it was to get around on public transit.

That evening, I crashed a going away party at Cafe Ba Ba Reeba, with a pre fixe menu. They chose well, and the tapas just kept arriving at the table.

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So good. So filling. The fullness level reminded me of a tapas Thanksgiving.

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Lani's friends were so nice to let me join in the fun! After dinner, we went to see Flight Facilities' DJ set at Primary. I loved it because I am absolutely obsessed with their song "Crave You" and it was so fun to hear a roomful of people singing along. It's a song you gotta sing to, don't you think? And they played a bunch of other songs I knew, only because I heard them before on Lani's mixes. She's so ahead of the game.

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Sorry, shoddy iPhone picture, but you can get an idea of the cool LED wall behind the dj booth. "Wasn't it cute that Flight Facilities dressed up for Halloween, with the little aviator hats?" I told Lani. "Oh that's not a Halloween thing. They always wear that," she said. Ah, I see.